Temporary visiting restrictions due to COVID-19

We recently made the difficult decision to suspend visiting to our hospital until further notice except in the below exceptional circumstances, to help reduce the spread of COVID-19.

Read more information about restrictions…


Messages for loved ones and keeping in touch

We recognise the impact that a long stay in hospital can have on families and the importance of maintaining strong communication.  Our ward staff are keeping in touch with patients’ next of kin directly and our Patient Advice and Liaison Service (PALS) can help pass on personal messages from family and friends.

Read more information about messages for loved ones…

Temporary visiting restrictions due to COVID-19

We recently made the difficult decision to suspend visiting to our hospital until further notice except in the below exceptional circumstances, to help reduce the spread of COVID-19.

Read more information about restrictions…


Messages for loved ones and keeping in touch

We recognise the impact that a long stay in hospital can have on families and the importance of maintaining strong communication.  Our ward staff are keeping in touch with patients’ next of kin directly and our Patient Advice and Liaison Service (PALS) can help pass on personal messages from family and friends.

Read more information about messages for loved ones…

During your stay in hospital you will meet a number of different members of staff.  All members of staff wear name badges, but if you are not sure who someone is or what they do, please feel free to ask them to introduce themselves and explain what they do. 

If you have any questions about your treatment, please ask a doctor or a nurse.

There are lots of opportunities for you to get involved with the Trust, from volunteering to attending our public meetings, our Annual General Meeting or our hospital open day which is held every year.

Rob Thompson

Last updated: 04 November 2019

‘I DON’T HAVE A DEATH SENTENCE HANGING OVER MY HEAD ANYMORE’

Rob’s Story

Rob Thompson, 48 from Clanfield, was diagnosed with stage 1 cancer of the oesophagus at Queen Alexandra Hospital in Portsmouth in 2015.

Rob explained: “It was totally unexpected. I have suffered from reflux issues for as long as I can remember. I had to have anti-reflux surgery done after I had a hiatus hernia when I was 21, but never really thought anything of it. It was not until I went for a run one day and started to feel really unwell that I decided I needed to get it checked out. It was very lucky that I did.”

“After my initial appointment, I was sent for a biopsy and a few days later I had my diagnosis. This was an incredibly scary time as the survival rates for cancer of the oesophagus are not great and basically give you five years to live after diagnosis and even less if it had spread to the lymph nodes.

“So I started the truly gruelling treatment phase straight away which included ‘Radio Frequency Ablation’ and ‘Argon Plasma Coagulation’ to burn away the tumour in my throat. This meant I had to have an electrical knife on the end of an endoscope passed down my throat to strip away the lining of my oesophagus and take the legion away from the underlying muscle. This was incredibly painful and I had to really dig deep to find ways of getting through it. I could not eat for weeks afterward and I had to try and swallow pureed food. It was really tough.

“I was approached about a two separate research trials during the course of my treatment. One was for a type of medication to reduce bleeding after my treatment and the other was simply for information gathering. I just thought that if they reduced my pain, helped me heal quicker or helped other people not have to go through what I was, then why not?”

 

The Research Trials

Rob took part in two trials. The first was called ChOPIN which stands for ‘Chemoprevention of Premalignant Intestinal Neoplasia’. In layman’s terms this was an information gathering study which looked at information from patients with hiatus hernia to try and identify any new hereditary factors. It looked to see if there was something in Rob’s genes to help medical professionals understand why this condition develops and perhaps provide new targets for therapy.

The second trial looked at whether a new drug could effectively manage the bleeding during Rob’s treatment. One of the challenges to the endoscopic treatment Rob had is managing the bleeding from small blood vessels. Currently the vessels are cauterised using an electrical current delivered through the endoscopic knife. However this research study was trialling a new drug – a clear gel that is applied to bleeding vessels and gently stops them from bleeding. This is better for the patient as it potentially causes less damage to the tissues. Furthermore, it does not need to be applied precisely to the blood vessels as the gel will spread out over the area, so it is potentially easier for the endoscopist to get to the right places.

 

Rob’s Feedback

Rob added: “If it were not for my early diagnosis and the proactive research at QA hospital, I would not be here today. Now I have real long-term outcomes. I still need to keep a close eye on things to keep the cancer at bay, but I don’t have to worry about a five year death sentence hanging over my head any more.

“The research trials I took part in didn’t involve anything onerous or invasive and just ran alongside my treatment plan. One of them even took place while I was under anaesthetic or sedation, so I didn’t even know it was happening. Every little helps while you’re having cancer treatment so I really felt that taking part in the trials was the best thing I could have done.

“I am incredibly lucky that the cancer had not spread to my lymph nodes and that it was caught in time. I would urge anyone who has reflux issues to get checked out asap. I would also recommend taking part in research trials to anyone. The team have been fantastic to me and really personable so that part of my experience was incredibly positive.”

If you are interested in taking part in a PHT clinical trial, you can get involved by asking your doctor about clinical research and whether it would be a good thing for you. You can find out more at http://portsmouthtechnologiestrialsunit.org.uk or you can contact research.office@porthosp.nhs.uk.

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